From Berkeley to Hollywood, storytelling slam breaks silence on devastating disorders affecting young people

The Alex Manfull Fund announces the Hollywood debut of TILT: Stories on the Edge, a live storytelling event being held at the The Broadwater LA, Main Stage

TILT is an incredibly powerful way to bring awareness to issues that people rarely hear about yet which can profoundly affect many.”

— Susan Manfull, PhD, Executive Director of The Alex Manfull Fund

HOLLYWOOD, CA, UNITED STATES, September 10, 2026 /EINPresswire.com/ — The Alex Manfull Fund, a nonprofit dedicated to improving the diagnosis and treatment of neuroimmune disorders affecting young people, announced the Hollywood debut of TILT: Stories on the Edge, a live storytelling event being held at the The Broadwater LA, Main Stage on September 24. The event will showcase the voices of 10 individuals sharing powerful five-minute stories that span “life on the edge.”

Among the stories being shared is that of LA native, 23-year-old David Orlinksy, who developed the neuroimmune condition known as PANDAS following a strep infection when he was just seven. The bacteria triggered his immune system to attack healthy brain tissue. Practically overnight, the academically gifted, competitive baseball player was replaced by a child gripped by intrusive thoughts, debilitating OCD and motor function issues–suddenly unable to engage in normal daily activities. It took a year for David, the son of two medical professionals, to be properly diagnosed and another year to be treated. David eventually recovered.

TILT-Hollywood is the latest in a traveling storytelling series that aims to bring urgent attention to PANS, PANDAS and other “stories on the edge.” Following sold-out events in Hermosa Beach and Berkeley, CA, TILT-Hollywood will showcase the voices of 10 individuals sharing powerful five-minute stories that range from resilience through adversity to moments of joy, growth, humor, and unexpected possibility.

The storytellers, from caregivers and survivors to clinicians who have battled a host of challenges, will share their stories live and unscripted. Half of the speakers will be pre-selected and five will be chosen from the audience through a live random drawing from submitted story pitches. Proceeds will support critical research and clinician training sponsored by The Alex Manfull Fund, helping to expand understanding, improve diagnosis, and strengthen care for those affected by neuroimmune disorders.

“TILT is an incredibly powerful way to bring awareness to issues that people rarely hear about yet which can profoundly affect many,” says Susan Manfull, PhD, Executive Director of The Alex Manfull Fund (TAMF). “We lost our only child, Alex, in the prime of her life because few people knew how to diagnose and treat the PANDAS disorder that was attacking her. TILT is a way to share stories like hers–experiences on the edge of human experience–ultimately fostering empathy, hope, and a sense of shared humanity.”

Executive Producer of TILT and TAMF Board member, Shari Strulson, adds that “TILT is an invitation to anyone who has stood at the edge of a crucial moment — disorienting, life-altering, or utterly resilient. These stories reveal both the challenges and the possibilities that emerge when life pushes us beyond the familiar. These voices deserve to be heard and witnessed.”

Tickets are limited and available for purchase online at https://givebutter.com/TILT-Hollywood. Donations are also accepted. Doors open at 7 pm; the event runs from 8-10 pm.

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About The Alex Manfull Fund
The Alex Manfull Fund was established by Susan and Towny Manfull in the memory of their only child, Alexandra “Alex” Manfull, who lost her life at age 26 due to untreated PANDAS. Her death was preventable. TAMF works to bring visibility, urgency, and hope to families impacted by PANS/PANDAS and to ensure that no other life be cut short or interrupted by PANS or PANDAS. Through funding research, clinician education, and awareness initiatives, the fund strengthens care and accelerates understanding of these complex neuroimmune conditions. To learn more about The Alex Manfull Fund, visit: https://thealexmanfullfund.org/

About PANS and PANDAS
PANS and PANDAS are neuroimmune disorders that affect young people after common bacterial and viral infections like strep throat and the flu.They are serious, life-altering conditions, causing sudden and debilitating changes in behavior, mood, and neurological function. Symptoms typically include obsessive compulsive behaviors, restrictive eating or tics. Other symptoms may include cognitive decline, behavioral issues, anxiety, insomnia, and urinary frequency. Onset may be sudden and dramatic.

About TILT: Stories on the Edge
TILT was born from the experiences of families navigating the sudden upheaval of PANS and PANDAS, when life changes in an instant, without warning, and everything familiar becomes uncertain. For these families, it can mean a child who is thriving one day and, almost overnight, is gripped by severe anxiety, tics, or behaviors that feel unrecognizable. TILT offers audiences a chance to connect, reflect, learn and be inspired to take on life’s challenges.

Contact
For media inquiries, contact Angie Gentile at media@thealexmanfullfund.org.
For more information about TILT and to submit a storytelling pitch, contact Shari Strulson at sharistrulson@gmail.com.

Angie Gentile
The Alex Manfull Fund
+1 571-243-0972
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